Comments on: Coming To Terms

By: Arjun Sen

Arjun Sen — Wed, 22 Jul 2009 20:16:40 +0000

My best to your son and the entire family. I stumbled upon your blog today and loved reading your every day life posts as a father. I’m a single dad who quit my corporate job to be at home with my daughter. I’ve just started a blog called raisingafather.blogspot.com (named after a book I’m getting ready to publish) and I’d love to link to one another’s since we discuss many of the same issues parents face.

(NukeDad) Sounds good. I checked out your blog but didn’t see a blogroll; no biggie, I’ll gladly add you; but I might suggest that you try and post a little more often. I think it would bring traffic to your blog and help your book sales. Thanks for stopping by!

By: Tara R.

Tara R. — Tue, 21 Jul 2009 23:38:22 +0000

That has to be a parent’s worst nightmare, a sick child and not know how to help or what’s wrong.

I hope NukeBoy2 stays well and doesn’t have a repeat of this episode.

(NukeDad) Thanks, Tara; we’re praying for the same thing.

Tara R.´s last blog ..For the win…

By: Chuck

Chuck — Tue, 21 Jul 2009 02:15:49 +0000

Reading through your post and these comments it’s clear you’re one educated guy on something that’s mostly still in the dark. I like to believe I’d be just as strong and focused in a similar situation.

Like the others I pray your son does not have to go through this again and if he does it isn’t threatening and provides answers.

(NukeDad) Thanks, Chuck; I’m trying to learn as much as I can since answers seem to be elusive.

Chuck´s last blog ..Lost and Found

By: WeaselMomma

WeaselMomma — Mon, 20 Jul 2009 21:08:48 +0000

The uncertainty of the whole thing must be it’s own form of hell. I hope this was just a fluke incident and that Voldermort never rears his ugly head again or if it does, it does so harmlessly and gives you answers and a course of action. I wish you some good sleep.

(NukeDad) Thanks, WeaselMomma; it’s getting a little better each day. The Nukesters are scrappers, so we won’t go down without a fight.

WeaselMomma´s last blog ..And The Winner Is

By: BBD

BBD — Mon, 20 Jul 2009 20:52:27 +0000

All I can say is, it does fade to the background. We had an incident with ThingOne when she was younger, shortly after ThingTwo was born. It wasn’t a seizure but she broke out in, I guess they were “Hives”. I don’t know why they call them that, they look nothing like hives. She looked like she had gone 10 rounds with Apollo Creed. She looked as if she was bruised all over and her face was all puffed up, eyes nearly shut completely from the swelling. It makes my stomach turn to this day thinking about it. They had NOTHING to tell us, lots of theories but none of them would commit to a diagnosis. They eventually settled on HSP (Henoch-Schonlein Purpura). Which in and of itself turned out to be not that bad but in the moment it was devastating, I felt so helpless, and that’s not a good thing for a father to feel when it comes to his children.

Keep going forward, live the life you all deserve. It’s much better that way.

BBD

(NukeDad) Wow, Big Bad Daddy, that sounds as traumatic as what we went through-glad to hear she is doing well. I agree with you on the “life that you deserve” part; it took a few days to come to that realization, but we’re not going to wait around for something bad to happen, in fact, we’re going to pick up the pace a little. What’s the old saying? Get busy livin’, or get busy dyin’. I like the first part.

By: tom

tom — Mon, 20 Jul 2009 20:22:06 +0000

We’re still puzzling about it too; though we have some seizure experience with Michael, it was a different sort (“myoclonic jerk” they call it) and was treatable once they were able to pin it down by catching an episode on the EEG. I really hope they can figure this out and get an answer, and maybe even a treatment.

We’re all praying for NB2 and your whole family here.

(NukeDad) Thanks, Tom; I’m hoping that it was, in fact, the head trauma from 2 days earlier that caused it and that we will never see it again. The problem is not knowing if that was the cause or not.

tom´s last blog ..Mommy Understands

By: Matt

Matt — Mon, 20 Jul 2009 20:13:23 +0000

Dude, I gotta say, your positive approach to this situation is inspiring. I feel for you and your family completely, that would scare the hell out of me. But for what its worth, I think everyone will benefit from your attitude.

(NukeDad) I hope you’re right, Matt. I’m usually a glass 1/2 full kind of guy, I’m just trying to figure out a way to keep it at that level.

Matt´s last blog ..The Wall

By: Momo Fali

Momo Fali — Mon, 20 Jul 2009 19:33:35 +0000

Joeprah hasn’t posted since April? That makes me feel better about neglecting my Dad-Blogs column. (Okay, not really. I still feel guilty.)

My son knows he’s different than other kids and he doesn’t question it too much. He seems to understand that some people are short, some people are tall and some people have totally screwed up hearts. He doesn’t know he’s at risk for a stroke, but he does know that he needs to tell us if he ever feels funny.

I am SO SORRY you have been thrust into this. I hope they figure things out. I hope your boy stays well. I hope everything turns out okay.

(NukeDad) Thanks, Momo; we appreciate it. I have a feeling that at some point I will take you up on your offer for moral support. I think he knows that something is going on, but he’s not going to worry about it, which is good; it’s NukeMom and I that I wonder about.

Momo Fali´s last blog ..Getting to Know Me: Bag o’ Meds Edition

By: Xbox4NappyRash

Xbox4NappyRash — Mon, 20 Jul 2009 18:12:20 +0000

Bloody hell.

Scary stuff for sure. I hope they pin it down for you at least. Give you an idea of what to expect.

(NukeDad) They’ve given us the basics, but what they can’t give us is the one thing we need most; a better idea of WHEN it will happen.

Xbox4NappyRash´s last blog ..Sing it, Neil

By: Karen

Karen — Mon, 20 Jul 2009 17:57:25 +0000

I hope he was able to see the heli pad from his bed, I imagine that it was the perfect view for a little boy! I really wish that there were more answers than what they have given you instead of all the questions. You definitely have a good approach to dealing with such a difficult situation. Hopefully Voldemort never comes to visit again and in time this will get pushed to the back of that mental junk drawer Melisa mentioned with all the other background fears parents have for their offspring. In the mean time I am glad that NukeBoy2 is back to normal and he and the rest of you Nukes are in my thoughts and prayers =)

(NukeDad) Thanks, Karen-he was able to see the helicopter, in fact, he got to see it take off and land a few times. He thought that was very cool. The hospital also brought in some jugglers; he got to see a clown juggle 2 tennis balls and a bowling ball. Never a dull moment.

Karen´s last blog ..Eyes for Jaclyn