Hospital Update

To fully tell this story will take more time than I have right now, but I wanted to let everyone know where we are. NukeBoy2 had his EEG yesterday, and his MRI and MRA this morning. The MRA is when they inject a dye in the body to see the blood vessels. Those were completed this morning, and the Neurologist just left a few minutes ago. EEG is normal, MRI looks normal so far; they are still downloading some of the images and getting them together. She (neurologist) is still reluctant to say that this was a seizure. I don’t know what else you’d call it, and, apparently, she doesn’t either. The preliminary MRI shows no sign of stroke, which is great news. The EEG also came back normal; again, good news. Blood work looked normal but they are running a few more tests. They won’t have final MRI results until this afternoon, but odds are we should be able to go home today. All. Good. News. Except this: they don’t know why this happened, and they say there is a 30% chance that it will happen again. I feel worse now than I did yesterday; are we now to be held prisoner by a condition that has a 70% chance of never happening again? A condition that we don’t even have a name for? “If he has a second episode then we can get a better idea of what we’re up against”, the neurologist said. I understand that, but I’m having a hard time wrapping my mind around it. This thing came completely out of the blue, and there are no signs that it even happened; now we have to wait and see if it happens again? For how long? A month? 2 years? Until he graduates? For the rest of his life? I’m relieved that he is back to normal; I am terrified of the future. Hopefully we’ll get more definitive answers this afternoon when the full MRI/MRA results come in, but you’ll have to forgive me if today my glass is 1/2 empty.

Launch It:

This entry was posted on Wednesday, July 15th, 2009 at 2:05 pm and is filed under Battlefront. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

Melisa

Oy. I’m so sorry that you and Nukemom have to be filled with worry. I don’t have any advice to offer (not that you were asking! haha), nor real words of wisdom. I can imagine myself saying to you, “Maybe you should try to take things one day at a time and you might start to feel better”, but those are just stupid words when they come from someone who hasn’t lived the same experience.

So all I’ll say is, I’m here if you need support, and I continue to send positivity your way.
Melisa´s last blog ..A Tale of Two Workers, Part One

Jul 15, 2009 @ 2:12 pm

Momo Fali

Ugh. The not knowing is so awful! I’m sorry. I hope and pray it never happens again.
Momo Fali´s last blog ..Getting to Know Me: Insomia Addition

Jul 15, 2009 @ 2:13 pm

BusyDad

That 1/2 empty outlook is completely understandable. As a friend and fellow dad, I’m stressed as hell for you. The bright side is, as you mentioned, nothing is wrong right now. But I get it. The “well what the hell do I do right NOW” is something any parent would be feeling. My thoughts are with you guys.
BusyDad´s last blog ..Just Call Me Britney

Jul 15, 2009 @ 2:18 pm

Karen

I hope they do come up with some answers. While it is great that he is fine now and that the tests don’t show anything wrong obviously what happened is very abnormal and not knowing is hell! NukeBoy2, you and your family are in my prayers.
Karen´s last blog ..Thanks Daddy…

Jul 15, 2009 @ 2:42 pm

Xbox4NappyRash

Terrible, truly.

The unexplained and unknown is awful.

You have my best.
Xbox4NappyRash´s last blog ..Sing it, Neil

Jul 15, 2009 @ 3:35 pm

tom

I feel really bad for you and your family, being “held hostage” by such a monumentally weighty unknown. You will remain in our prayers through this. We’re all with you and NukeBoy2 and the whole family, hoping and praying for the best.

It’s too bad there isn’t an EEG equivalent of a Holter monitor so if it does happen again they’d have something to go on.

Hang in there, Nuclear Family.
tom´s last blog ..Parenting in the Real World

Jul 15, 2009 @ 3:52 pm

Tara R.

Glad that the news you’ve gotten has been encouraging, but the waiting is terrible. Hope you finally get the test results back and that NukeBoy2′s episode was a one time deal. Prayers for him and your family.
Tara R.´s last blog ..Common blog post

Jul 15, 2009 @ 4:27 pm

PJ Mullen

I hope the full results provide some clarity for you, but regardless NukeBoy and your family will continue to be in the thoughts and prayers of mine.
PJ Mullen´s last blog ..The Bouncy House

Jul 15, 2009 @ 4:53 pm

NukeDad

Thanks to all of you. I normally answer each comment individually, but I am spent. Mentally, emotionally and physically. It’s 6:30pm and I’m going to bed (I hope).
NukeDad´s last blog ..Hospital Update

Jul 15, 2009 @ 5:40 pm

SurprisedMom

My heart goes out to you and the NukeFamily. I’m sorry you have to live with the uncertainty. My hope is that when all the test results come back they can give you a full explanation of what happened and that you will never have to experience this again. I hope you are sleeping soundly and recovering, at least a little, from this experience.
My prayers and positive thoughts are still being sent your way.
SurprisedMom´s last blog ..Being up late

Jul 15, 2009 @ 6:34 pm

Chuck

I’m truly sorry. The worry would really paralyze me. Hang in there and know that your family is in my family’s prayers. All the best.
Chuck´s last blog ..ItzaWinner – ItzaBitza

Jul 15, 2009 @ 8:22 pm

Mr. Man

Dude- I know this can’t be easy, but the answer is “no”. You and yours cannot be held hostage to something that may not ever happen again. It is natural to be wary and cautious (especially with all of this just occurring so suddenly), but please try to place the worry where it belongs…in the Hands of the Master.
Mr. Man´s last blog ..Here’s To NukeBoy2!!!

Jul 15, 2009 @ 10:43 pm

seashore

Not knowing is the worst feeling. I will be keeping Nuke family in my thoughts and prayers.
seashore´s last blog ..Random Rants (and Raves)

Jul 16, 2009 @ 7:32 am

Leta

Geoff-
I’ve been thinking about Matthew and what the doctors said (as has the rest of the family) and 1 question I have is if they don’t know what caused this or what it is then how can they say that there is a 30% chance of it happening again? Is that their best guess? Why not 12.5% or 37.7634%? Where did they come up with 30% and there must be some other test or something that they can do to find out what happened. Is heat stroke/exhaustion possible? A bug bite? Did they check for Lyme disease? West Nile? I know your frustration and at the time they were telling you this I’m sure neither you nor Elizabeth had had much sleep…Go back after you are rested and push a little harder. There has to be an answer. I Love You>

(NukeDad) A lot of the same questions I have; unfortunately, I haven’t found the answers yet. You’re right about the rest-Matthew and I are getting ready for a nap right now. When I’m better rested I plan to go all Columbo on this.

Jul 16, 2009 @ 10:51 am

FilmFather

Hang in there, NukeDad. My thoughts are with you, NB2, and the whole NukeFamily.
FilmFather´s last blog ..Finding Nemo (2003)

Jul 16, 2009 @ 12:43 pm

Otter

I feel terrible for you having to worry about that. Hopefully you will find out something more definitive. I will keep your family in my prayers.
Otter´s last blog ..Scotland: To Do List

Jul 16, 2009 @ 3:18 pm

Matt

I admit I’m coming in on this late. My apologies. Also wanted to let you know that you’re not alone in the frustration and worry you must be feeling from not knowing what’s going on. I think “limbo” is one of the worst places to be, especially when it concerns loved ones. Hang in there, dude…hope you get some answers.
Matt´s last blog ..The Wall

Jul 17, 2009 @ 4:00 pm

WeaselMomma

I have been out of town without internet. Melisa has been keeping me updated. We have been praying for you all and will continue to do so. I hope you all get some peaceful rest soon.
WeaselMomma´s last blog ..Indestructible Bling Giveaway

Jul 18, 2009 @ 7:14 am